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Table 1: Summary of Existing Diethylstilbestrol Cohorts

Cohort (Reference) Selection of Study Participants Type of Study Estimated Mean Dosage Persons Exposed Controls
g n
DESAD (35)* Daughters selected through review of maternal prenatal records and referrals Cohort 4.2† 4104 1033
DES Mothers Study
(36)*
Mothers traced through review of prenatal records Cohort Unknown 3029 3029
Mayo Clinic Sons Study (70) Sons traced through review of maternal prenatal records Cohort 1.4 828 676
Connecticut Mothers Study (37) Mothers selected through review of prenatal records Cohort 2.1 3315 1405
Dieckmann and Colleagues (15) Pregnant women enrolled in randomized clinical trials; daughters and sons identified through follow-up studies Randomized clinical trial 11.5 826 mothers
414 daughters
426 sons
804 mothers
393 daughters
423 sons
BRMC Study (18)* Pregnant diabetic women enrolled in randomized clinical trial; daughters and sons identified through follow-up study Randomized clinical trial 16.3 79 72
British Randomized Trial (40) Pregnant women enrolled in randomized clinical trial; daughters and sons identified through follow-up study Randomized clinical trial 11.5 379 mothers
144 daughters
177 sons
371 mothers
170 daughters
163 sons
Registry for Research on Carcinogensis (41) Women with clear-cell cervicovaginal cancer reported to registry Referral-based registry Unknown 586‡ 0
* BRMC = British Medical Council; DES = diethylstilbestrol; DESAD = Diethylstilbestrol Adenosis Project
† Median dosage based on 26% of cohort whose DES dosage and duration of DES use unknown
‡ Presumed to have been exposed. Of these, 60% (351) have confirmed DES exposure

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